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Encyclopedia > Lorenzo Odone

Lorenzo Odone (born May 29, 1978)[1] is a person with Adrenoleukodystrophy (ALD), and is notable because of the quest for a treatment by his parents, Augusto and Michaela Odone. May 29 is the 149th day of the year in the Gregorian calendar (150th in leap years). ... 1978 (MCMLXXVIII) was a common year starting on Sunday (the link is to a full 1978 calendar). ... Adrenoleukodystrophy (ALD) is a degenerative disorder of the fatty white sheath covering nerve fibers, known as myelin. ... Michaela Murphy Odone was the mother of ALD patient Lorenzo Odone. ...

Contents


The quest for a treatment

With the limited research available, his father Augusto sparked the invention of Lorenzo's oil, which is the first agent to have shown therapeutic benefit in ALD. His parents' quest for a treatment for Lorenzo was depicted in the film Lorenzo's Oil, and is the subject of the Phil Collins song Lorenzo (on his 1996 album Dance Into the Light). Lorenzos Oil is a 1992 dramatic film directed by George Miller. ... Lorenzos Oil is a 1992 dramatic film directed by George Miller. ... Philip David Charles Collins (born January 30, 1951 in London), better known as Phil Collins, is a British rock/pop musician. ... Album cover for Phil Collinss Dance Into the Light. ...


How Lorenzo is now

Lorenzo is still alive and celebrated his 27th birthday in 2005. He remains almost totally paralyzed but is, according to his father Augusto, "holding his own." Lorenzo cannot see, speak or move on his own. He communicates by wiggling his fingers and blinking his eyes. His mind is intact and he continues to enjoy music and having people read to him. He lives with his father in Virginia and is cared for by nurses and family friend Oumouri Hassane.


Lorenzo's Parents

Lorenzo's mother Michaela Odone died from lung cancer in June 2000. His father Augusto Odone continues to organize and support new research into the causes of ALD through the Myelin Project, which he founded. A lot of love from Mr.Holmes


Further reading

  • Kugler, Mary. ALD and Lorenzo's Oil. About. URL accessed on 2006-06-03.

 

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