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Lupus Canada is a national voluntary organization dedicated to improving the lives of people living with lupus through advocacy, education, public awareness, support and research. Formed in 1987, Lupus Canada is a federally registered non-profit charity and its national office is located in Markham, Ontario. Systemic lupus erythematosus (SLE or lupus) is a chronic autoimmune disease that is potentially debilitating and sometimes fatal as the immune system attacks the body’s cells and tissue, resulting in inflammation and tissue damage. ...
Advocacy is the act of arguing on behalf of a particular issue, idea or person. ...
A non-profit organization (abbreviated NPO, or non-profit or not-for-profit) is an organization whose primary objective is to support an issue or matter of private interest or public concern for non-commercial purposes, without concern for monetary profit. ...
A charitable organization (also known as a charity) is a trust, company or unincorporated association established for charitable purposes only. ...
Map showing Markhams location in York Region Coordinates: , Country Canada Province Ontario Regional Municipality York Region Communities Buttonville, Thornhill, German Mills, Milliken, Unionville Settled 1794 Incorporated 1972 (town) Government - Mayor Frank Scarpitti - Deputy Mayor Jim Jones - Regional Councillors Jack Heath, Tony Wong, Gordon Landon - MPs Susan Kadis (LPC) - Thornhill...
Lupus Canada works in partnership with regional non-profit organizations (also known as member organizations), which provide Canadians individual memberships and local support in their province.
Charitable works Some of Lupus Canada’s significant achievements and contributions include: - Working with member organizations to provide lupus resources and support services for all Canadians.
- Providing resource information for people living with lupus through print and online newsletters as well as educational materials, which include posters, information packages, fact sheets and brochures.
- Hosting annual Patient Symposiums, which bring together people with lupus, their families and supporters, lupus physicians and researchers, and lupus volunteers from across Canada to share the latest developments and information in lupus research and treatments.
- Conducting an annual observance of World Lupus Day (May 10) and promoting October as Lupus Awareness Month to call national attention to the need for greater research, awareness and patient services.
- Continuing to provide financial support to The Canadian Network for Improved Outcomes in Systemic Lupus (CaNIOS), a Canadian national research group on SLE (Systemic Lupus Erythematosus). Since its inception, CaNIOS has had up to a total of 57 clinicians affiliated with 28 Canadian academic-based rheumatic disease units and community rheumatology clinics, and hundreds of patients participating simultaneously in the research effort.
- Continuing its support for the Canadian Institute for Health Research (CIHR) Fellowship program and Dr. Sasha Bernatsky’s research around the risk of cancer in lupus.
- Continuing its outreach of lupus resources and maintaining lupus awareness among medical professionals, clinicians, online and print media, Aboriginal reserve communities and women’s health networks.
Rheumatology, a subspecialty of internal medicine, is devoted to the diagnosis and therapy of rheumatic diseases. ...
Cancer is a class of diseases or disorders characterized by uncontrolled division of cells and the ability of these to spread, either by direct growth into adjacent tissue through invasion, or by implantation into distant sites by metastasis (where cancer cells are transported through the bloodstream or lymphatic system). ...
Lupus Statistics Although it is estimated to affect more than 50,000 Canadians, often many people will have never heard of lupus until they themselves or somebody they know is diagnosed with this autoimmune disorder. Autoimmunity is the failure of an organism to recognize its own constituent parts (down to the sub-molecular levels) as self, which results in an immune response against its own cells and tissues. ...
Often known as “The Disease with a Thousand Faces,” lupus can be difficult to diagnose by medical professionals. Over 80% of people diagnosed with lupus are women in the prime years of their lives – between the ages of 15 and 45 years. In Canada as in the United States, lupus is more common among people of African, Caribbean, Asian and Aboriginal descent.
Member Organizations - Lupus Erythematosus Society of Saskatchewan (L.E.S.S.)
- Lupus Society of Manitoba Inc.
- Lupus Foundation of Ontario
- Lupus Society of Nova Scotia
- Lupus Newfoundland and Labrador
See also
External links - Young Lupus Canada (for youth)
- Find Your local Lupus Member Organizations
- Living Well with Lupus Fact Sheets
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